Over the last 3 or so years, I have been seeing a counselor. Sometimes consistently and sometimes not. Usually when I am not seeing her consistently is when I really should be – funny how that works. In actuality, it’s really not funny. It’s actually pretty stressful for me when I take breaks for extended periods of time. Anyway, my counselor has been key in helping me sort through many of my life changes. I don’t know if it’s HER or if it’s just the fact that I have someone outside of my life to talk to; an objective person helps so much. If you haven’t tried it, you should!
Fantasy vs. Reality is a hot topic in our sessions. Fantasy – what you think or dream up to be in a given situation. Reality – the actual situation at hand. Some people can just roll with whatever happens in the reality even if it’s different from what they thought; whereas, others (**cough, me, cough**) have a harder time coping with the change. I’ve generally had a harder time adjusting to given changes in my life ever since I can remember. As I have gotten older, I’ve coped with some changes and have had harder time with others. I mainly struggle with the ones that have drastically changed from what *I thought* would be how life would work out.
For example, one thing that I thought would be easy would be having children. Isn’t this what we all think? At least, what we all think when we don’t have any perceived medical diagnosis, anyway? You get married, buy a house and have children. After all, it’s the “usual way” people do things. Now, I realize not everyone does this in that order and that’s totally fine. But this is what I thought it would be for me and my husband.
Unfortunately, it wasn’t that easy. Actually it was the exact opposite. About 3 years into our marriage and 2 years of no baby, I became suspicious of a possible issue. Nick and I were open to having kids but it wasn’t an intentional act of trying and tracking; however, I felt something wasn’t right. In the summer of 2014, after finally convincing my husband of doing some tests, we found ourselves at the Houston Fertility Institute at their Sugar Land, Texas location. We were told in our initial consultation that couples have a 25% chance of conceiving in their first year of trying (that’s WITHOUT any perceived issues) and then after that the numbers drop significantly: down to 5% per year and it lowers every year after that. Talk about a punch in the gut! We were in our second year of being open to children and BOOM, a scientific kick in the pants.
We went on to do some testing. I was having feminine issues with my cycle anyway and during “that time of the month” having a lot of pain. Anyway, the results from my tests weren’t good. I had stage 3 to stage 4 endometriosis. According to Mayo Clinic, endometriosis “is an often painful disorder in which tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus. Endometriosis most commonly involves your ovaries, fallopian tubes and the tissue lining your pelvis. Rarely, endometrial tissue may spread beyond pelvic organs” (http://www.mayoclinic.org/diseases-conditions/endometriosis/home/ovc-20236421).
I don’t think I could have been more devastated. This is not what I dreamed up, remember? This is not how it was supposed to be for us. This made our chances of having a baby even less. Unfortunately, if we wanted to do any fertility treatments it could and would make the disease worse as it feeds off estrogen in your body; so, if we did do anything, we would be taking the risk of making this worse for us. We just weren’t ready to take that risk. In fact, we were actually trying to avoid it as much as possible. I was 25 years old – this shouldn’t be happening.
Nick and I opted for me to undergo surgery to remove as much of the endometriosis as possible so we could possibly try to conceive on our own. Here’s the deal: endometriosis grows microscopically so anything they could see and remove, they would but it didn’t mean I was necessarily in the clear. It’s constantly growing. So following the procedure, I would have monthly injections that would essentially put me into menopause to try to reduce the legions as much as possible. I wasn’t too excited about it. Surgery, in general, is usually pretty rough for me – I’ve had a few in my life to know the general gist of what would happen post-op. My body takes forever to get rid of the anesthesia.
The laparoscopic procedure was slated for 90 minutes. The doctor would blow my stomach up with air so they could see the organs and be able to manipulate them to burn off the legions – hopefully without damaging any other organs. The worse part of it was that my ovaries had huge cysts on them. Taking those out wouldn’t be easy and in fact, it would be so important for the doctor to be precise as to not damage my ovaries further. Every time they take a cyst out, they would be taking part of my ovary (not enough to cause permanent infertility but that was definitely a risk). Then, there’s the whole we “really don’t know what it will be like until we are in there” uncertainty and you always hope it’s better than the doctors expect.
Little did I know this 90-minute-you’ll-be-back-on-your-feet-in-3-days procedure, turned into blowing my stomach up a second time and a 3 hour procedure. Of course, I didn’t know any of this until I woke up from the surgery. The whole 3 days back on your feet was a LOAD OF CRAP. It took me well over a month to feel “normal” again. You know that fantasy vs. reality thing I was talking about before – yep, I was not happy. In fact, I was angry. Well, let me take a step back – I was very glad the doctor took her time – I had such a bad cyst on my fallopian tube that had she not taken her time, I could have lost it or woken up with a cut open abdomen. So, I am very thankful that. But I was still mad. I was so uncomfortable for weeks! Have you ever had gas pumped in your stomach for any procedure, IT IS AWFUL! Again, this is not what I was expecting. And I had a very hard time accepting that.
Honestly, this whole time I had a hard time dealing with the reality of what was happening and how this was my fault. My body’s fault. Nick, in no way, made me feel this way – this was something I was personally dealing with. In fact, he was amazing during this process. I think if you are the one with the diagnosis in the relationship, it’s normal to have these feelings. But it still sucks, to say the least.
By September 2014, I was on those menopause shots. Okay, again – totally not fun. Talk about a wild roller coaster of emotions, literally. But this, again, was our best chance to combat the endometriosis from growing back quickly and to potentially start trying when all this was over. A medically induced menopause at 25 years old – that was really hard to wrap my mind around it. I wasn’t supposed to have a cycle while on this medicine…..until I did. THAT WAS AWFUL. If you’re a girl, you know an unexpected period isn’t fun at all. Nope. Not at all.
After 3 months on the shots, I had an ultrasound in December 2014 and I was devastated. The cysts had grown back. Not as big but they were there which meant the shots really didn’t help. Maybe they did a little bit but the cysts were there. THE CYSTS WERE THERE! SERIOUSLY WHAT THE HELL! I was screaming inside on that table. I felt like I had put my body and my mental health through absolute torture the last 6 months! For what!?!
Nick and I ended up right where we didn’t want to be…..
Facing the biggest personal and financial decision of our lives…..
Here’s to everything in between (including the crap),